Our Red Carpet Diva contributor, Valerie Greenberg, brings us an inspiring story for 2013!
Ellie White is a beautiful, talented and brave 14-year-old girl with a zest for life and an ability to make her dreams come true......
Our special guest, Ellie White and her immediate family, will be returning to Wilmington to help host our 5th Annual Fund Raiser Dinner to benefit her charity, The Ellie White Foundation for Rare Genetic Disorders.
Cost: $150/person (Four Course Dinner, Tax, Gratuity)
If you are unable to join us, you are more than welcome to make a tax deductible donation to the foundation below.
Over the years we have had the support of local and regional celebrity chefs to help raise money for Ellie and other people affected by these terminal disorders that often get overlooked because of their rarity. This year, we have invited a close personal friend, who too has battled a terminal disease himself, Chef Shawn Wellersdick.
Not long ago, Shawn was diagnosed with cancer. He went through a painful chemotherapy treatment and ultimately beat it just in time to qualify and complete the Boston Marathon. Manna's owner, Billy, had the pleasure of working under Shawn for many years and his tutelage and mentorship has provided him with the foundation that he still leans on at manna.
Please join Billy, the crew at Manna and friends as they attempt to continue to assist funding for research for Wolfram Syndrome and other genetic disorders that affect people (particularly children) everywhere. While the efforts - including these 5 dinners and 4 in Ellie's home state of Colorado - have raised nearly $150,000, it is literally a drop in the bucket in comparison to the funds that are necessary for case studies, further research and medicine: which may one day find a cure for Ellie and others!
Thank you for your interest in the Ellie White Foundation.
Wolfram Syndrome causes diabetes at a very young age, blindness, hearing loss, and eventually it affects the brain stem, causing respiratory failure, also at an early age. With no current cure, the life expectancy of a patient is typically less than 30 years.
Ellie White is far wiser than her 14 years. She is an inspiration to others and helps raise awareness for her terminal disease. Her dance group, The Silhouettes, came in second on "America's Got Talent" sixth season. She used this public platform to bring awareness to Wolfram Syndrome. Even though she's losing her hearing and vision, she loves to dance.
Please note that the organization is a 501(c)(3) public charity and so the full amount of any contribution you make will be deductible for federal income tax purposes.
Directly support the Wolfram Syndrome research, and get a cause bracelet, via the Wolfram Syndrome Awareness GoFundMe web page
A documentary film is currently being made about Ellie White's life and mission, which will allow Ellie to continue to amaze and inspire for generations to come.
For more information about donating,
please e-mail Beth White.