Ellie In The News

 Ellie made her Broadway debut in Elf-The Musical despite battling a rare health condition known as Wolfram’s syndrome, a genetic disorder linked to diabetes, vision and hearing loss and  life-threatening respiratory problems.

Our Red Carpet Diva contributor, Valerie Greenberg, brings us an inspiring story for 2013!
Ellie White is a beautiful, talented and brave 15-year-old girl with a zest for life and an ability to make her dreams come true......

The Ellie White Foundation's Facebook page
Encore online article about Ellie White fund fundraiser at Manna Wilmington, NC
University of Colorado article about Ellie White's cause for a cure
Eight years after Ellie's pediatrician told Beth White to be prepared to spend several days at the Barbara Davis Center, Ellie continues to receive care there.....
Ellie White explains Wolfram Syndrome
Wolfram Syndrome on You Tube...
WISTV 10 Ellie White, 10, is the focus of a local documentary and fundraiser to help her with a rare and incurable condition that will steal her vision and hearing over the next few months.
Many of us rely on our words and eyesight to get us through the day, and even if someone is blind or deaf, there's still sign language and Braille. But for one girl, those luxuries won't be an option soon....

Denver's JDRF Walk to Cure Diabetes raises $850,00

For the White family, the walk is a 5-year-old tradition, and its team was one of the largest at the event, with more than 100 people all wearing the team logo — a silhouette of Ellie dancing. Ellie was diagnosed with Type 1 diabetes seven years ago......


5th Annual
"Hats off to Ellie"
Kentucky Derby Party

Saturday, May 4, 2019    1:30pm-5pm

To RSVP please email:
Beth White OR Moira Hagen

Purchase Advance Tickets by April 27th! $30 for adults, $10 for children. Click HERE to RSVP. Prices will be higher at the door. We will provide food, drinks, entertainment, and a lovely afternoon of fun!

All proceeds to benefit research and medicinal studies into Wolfram Syndrome at Washington University, St. Louis. MO under Dr. Fumi Urano

Silent Auction, Delicious Food,
Games, Mint Juleps, Beer, Wine,
Horses and Saving Lives !!!
Downloadable Flyer, PDF
Hope to see you there!

To RSVP please email:
Beth White OR Moira Hagen

Ellie White and her brother Ryan

Thank you for your interest in the Ellie White Foundation.

Wolfram Syndrome causes diabetes at a very young age, blindness, hearing loss, and eventually it affects the brain stem, causing respiratory failure, also at an early age. With no current cure, the life expectancy of a patient is typically less than 30 years.

Ellie White is far wiser than her 16 years. She is an inspiration to others and helps raise awareness for her terminal disease. Her dance group, The Silhouettes, came in second on "America's Got Talent" sixth season. She used this public platform to bring awareness to Wolfram Syndrome. Even though she's losing her hearing and vision, she loves to dance.

Please note that the organization is a 501(c)(3) public charity and so the full amount of any contribution you make will be deductible for federal income tax purposes.

Directly support the Wolfram Syndrome research, and get a cause bracelet, via the Wolfram Syndrome Awareness GoFundMe web page

A documentary film is currently being made about Ellie White's life and mission, which will allow Ellie to continue to amaze and inspire for generations to come.

For more information about donating,
please e-mail Beth White (beth [at] elliewhitefoundation [dot] org).