Our Red Carpet Diva contributor, Valerie Greenberg, brings us an inspiring story for 2013!
Ellie White is a beautiful, talented and brave 15-year-old girl with a zest for life and an ability to make her dreams come true......
Please join us at manna this Wednesday, July 11th. We are incredibly honored to be the guests of Billy Melon, at his stunning restaurant, manna, and the recipients of the generous support of his guests and our friends in the beautiful town of Wilmington! (manna 123 Princess St.) We are constantly blessed by the love and support from the Maguire family and we recently found out that our dear friend, Jill Maguire, has organized that ALL of the donations raised through Billy's amazing dinner party and silent auction, will be matched! We also recently learned that the Dean and Executive Faculty at Washington University School of Medicine in St. Louis has decided NOT to deduct ANY indirect costs from ANY donations that our foundation gives to the work of Dr. Fumihiko Urano, to stop this insidious disorder, Wolfram syndrome. We have worked toward this goal for a long time and are humbled that the University recognizes the importance of the critical, life-saving research that Dr. Urano and his lab are doing at a record pace, as well as the generous gifts from our donors on his behalf. This is an amazing and beautiful combination of giving and we hope you will join us at this historic time where we can work together to save lives.
Silent Auction & Dinner
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Hope to see you there!
Thank you for your interest in the Ellie White Foundation.
Wolfram Syndrome causes diabetes at a very young age, blindness, hearing loss, and eventually it affects the brain stem, causing respiratory failure, also at an early age. With no current cure, the life expectancy of a patient is typically less than 30 years.
Ellie White is far wiser than her 16 years. She is an inspiration to others and helps raise awareness for her terminal disease. Her dance group, The Silhouettes, came in second on "America's Got Talent" sixth season. She used this public platform to bring awareness to Wolfram Syndrome. Even though she's losing her hearing and vision, she loves to dance.
Please note that the organization is a 501(c)(3) public charity and so the full amount of any contribution you make will be deductible for federal income tax purposes.
Directly support the Wolfram Syndrome research, and get a cause bracelet, via the Wolfram Syndrome Awareness GoFundMe web page
A documentary film is currently being made about Ellie White's life and mission, which will allow Ellie to continue to amaze and inspire for generations to come.
For more information about donating,
please e-mail Beth White (beth [at] elliewhitefoundation [dot] org).