Our Red Carpet Diva contributor, Valerie Greenberg, brings us an inspiring story for 2013!
Ellie White is a beautiful, talented and brave 15-year-old girl with a zest for life and an ability to make her dreams come true......
Thank You! Thank You!
Over $20,000 raised!!!
2017 EWF 5k Fun Run, Walk And
SWEET SIXTEEN Birthday Bash
We are so blessed with the best friends in the universe! Thank you all for making Ellie White's SIXTEENTH Birthday Fundaiser the BEST EVER! We raised OVER $10,000, and EXCEEDED our goal! We had a $10,000 matching opportunity - and because of all of the love and support, we MADE IT! That means OVER $20,000 will go to Dr. Fumihiko Urano for his continued research - TUDCA trial NEXT!!!
Thank you for your interest in the Ellie White Foundation.
Wolfram Syndrome causes diabetes at a very young age, blindness, hearing loss, and eventually it affects the brain stem, causing respiratory failure, also at an early age. With no current cure, the life expectancy of a patient is typically less than 30 years.
Ellie White is far wiser than her 16 years. She is an inspiration to others and helps raise awareness for her terminal disease. Her dance group, The Silhouettes, came in second on "America's Got Talent" sixth season. She used this public platform to bring awareness to Wolfram Syndrome. Even though she's losing her hearing and vision, she loves to dance.
Please note that the organization is a 501(c)(3) public charity and so the full amount of any contribution you make will be deductible for federal income tax purposes.
Directly support the Wolfram Syndrome research, and get a cause bracelet, via the Wolfram Syndrome Awareness GoFundMe web page
A documentary film is currently being made about Ellie White's life and mission, which will allow Ellie to continue to amaze and inspire for generations to come.
For more information about donating,
please e-mail Beth White (beth [at] elliewhitefoundation [dot] org).