Ellie In The News

 Ellie made her Broadway debut in Elf-The Musical despite battling a rare health condition known as Wolfram’s syndrome, a genetic disorder linked to diabetes, vision and hearing loss and  life-threatening respiratory problems.

Our Red Carpet Diva contributor, Valerie Greenberg, brings us an inspiring story for 2013!
Ellie White is a beautiful, talented and brave 14-year-old girl with a zest for life and an ability to make her dreams come true......

The Ellie White Foundation's Facebook page
Encore online article about Ellie White fund fundraiser at Manna Wilmington, NC
University of Colorado article about Ellie White's cause for a cure
Eight years after Ellie's pediatrician told Beth White to be prepared to spend several days at the Barbara Davis Center, Ellie continues to receive care there.....
Ellie White explains Wolfram Syndrome
Wolfram Syndrome on You Tube...
WISTV 10 Ellie White, 10, is the focus of a local documentary and fundraiser to help her with a rare and incurable condition that will steal her vision and hearing over the next few months.
Many of us rely on our words and eyesight to get us through the day, and even if someone is blind or deaf, there's still sign language and Braille. But for one girl, those luxuries won't be an option soon....

Denver's JDRF Walk to Cure Diabetes raises $850,00

For the White family, the walk is a 5-year-old tradition, and its team was one of the largest at the event, with more than 100 people all wearing the team logo — a silhouette of Ellie dancing. Ellie was diagnosed with Type 1 diabetes seven years ago......

Upcoming Event

Pic Of Ellie

5th Annual EWF
Manna Fund Raiser Dinner & Silent Auction

Guest Chef: Shawn Wellersdick (PortLand Grille)
123 Princess Street, Wilmington, NC
July 6th, 2016 | 6pm
Manna Avenue Restaurant

Our special guest, Ellie White and her immediate family, will be returning to Wilmington to help host our 5th Annual Fund Raiser Dinner to benefit her charity, The Ellie White Foundation for Rare Genetic Disorders.

Cost: $150/person (Four Course Dinner, Tax, Gratuity)

Feel free to contact Billy directly at Manna at (910)-763-5252 OR respond via email to billy [at] mannaavenue [dot] com if you would like to come and/or need more information regarding the dinner.

If you are unable to join us, you are more than welcome to make a tax deductible donation to the foundation below.

Pic Of Kyle

Over the years we have had the support of local and regional celebrity chefs to help raise money for Ellie and other people affected by these terminal disorders that often get overlooked because of their rarity. This year, we have invited a close personal friend, who too has battled a terminal disease himself, Chef Shawn Wellersdick.

Not long ago, Shawn was diagnosed with cancer. He went through a painful chemotherapy treatment and ultimately beat it just in time to qualify and complete the Boston Marathon. Manna's owner, Billy, had the pleasure of working under Shawn for many years and his tutelage and mentorship has provided him with the foundation that he still leans on at manna.

Please join Billy, the crew at Manna and friends as they attempt to continue to assist funding for research for Wolfram Syndrome and other genetic disorders that affect people (particularly children) everywhere. While the efforts - including these 5 dinners and 4 in Ellie's home state of Colorado - have raised nearly $150,000, it is literally a drop in the bucket in comparison to the funds that are necessary for case studies, further research and medicine: which may one day find a cure for Ellie and others!

Ellie White and her brother Ryan

Thank you for your interest in the Ellie White Foundation.

Wolfram Syndrome causes diabetes at a very young age, blindness, hearing loss, and eventually it affects the brain stem, causing respiratory failure, also at an early age. With no current cure, the life expectancy of a patient is typically less than 30 years.

Ellie White is far wiser than her 14 years. She is an inspiration to others and helps raise awareness for her terminal disease. Her dance group, The Silhouettes, came in second on "America's Got Talent" sixth season. She used this public platform to bring awareness to Wolfram Syndrome. Even though she's losing her hearing and vision, she loves to dance.

Please note that the organization is a 501(c)(3) public charity and so the full amount of any contribution you make will be deductible for federal income tax purposes.

Directly support the Wolfram Syndrome research, and get a cause bracelet, via the Wolfram Syndrome Awareness GoFundMe web page

A documentary film is currently being made about Ellie White's life and mission, which will allow Ellie to continue to amaze and inspire for generations to come.

For more information about donating,
please e-mail Beth White.