Our Red Carpet Diva contributor, Valerie Greenberg, brings us an inspiring story for 2013!
Ellie White is a beautiful, talented and brave 14-year-old girl with a zest for life and an ability to make her dreams come true......
Thank you for your interest in the Ellie White Foundation.
Wolfram Syndrome causes diabetes at a very young age, blindness, hearing loss, and eventually it affects the brain stem, causing respiratory failure, also at an early age. With no current cure, the life expectancy of a patient is typically less than 30 years.
Ellie White is far wiser than her 14 years. She is an inspiration to others and helps raise awareness for her terminal disease. Her dance group, The Silhouettes, came in second on "America's Got Talent" sixth season. She used this public platform to bring awareness to Wolfram Syndrome. Even though she's losing her hearing and vision, she loves to dance.
Please note that the organization is a 501(c)(3) public charity and so the full amount of any contribution you make will be deductible for federal income tax purposes.
Directly support the Wolfram Syndrome research, and get a cause bracelet, via the Wolfram Syndrome Awareness GoFundMe web page
A documentary film is currently being made about Ellie White's life and mission, which will allow Ellie to continue to amaze and inspire for generations to come.
For more information about donating,
please e-mail Beth White.